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Do You Ever Feel Like Life On Stimulants Is Some Sort Of Cursed Half-life?
Maybe it's because I've been on them so long they don't work as well anymore but it's like I can't really sleep (nap) but I can't necessarily function either.
Yes! So well said… cursed half-life…my body is exhausted and tired and needs sleep… I feel it in my bones, but the medication is keeping it very much awake. So I am functioning, but I’m tired with… read more
Hi Everyone! Can Someone Explain To Me How A EEG Testing Is Done?
I’m scheduled to have this procedure just wanted to know what to expect for
Hello MariaWikeValdez
I want to thank you for reaching out to inform me about the testing. Again Thank you.
How Would They Treat Sleep Paralysis Associated With Narcolepsy?
For years now I have been having symptoms of Sleep paralysis and it is getting worse.I am being put on CPAP for the upteen time I am being treated for Narcolepsy on and off diagnosed 11 years ago;presently now on treatment Treatment for depression over the last 20 years has failed.Don't know what to do with myself very frustrated to lead life like this
I agree with the stimulant comment. I've found that sleep paralysis is a lot easier to deal with during the day. I absolutely will not sleep between midnight and 6 am. Unless I have no choice. Always… read more
Does Anyone Take Sunosi To Treat Their Narolepsy. If Yea, How Does It Work For You? I Was Recently Prescribed It About Three Weeks Ago.
Not having the best results, definitely need something better. I still get quite tired by lunchtime and often have a hard time not dozing off. What do you take now and does it work? Any helpful tips… read more
Anyone Out There With Narcolepsy Type 1 And Need A Wheelchair On Days When Cataplexy And Balance Are Bad? If So, What Type Do You Have?
I have narcolepsy but my son is a paraplegic.. The best manual chair is (Qwicki) The best seat cushion is ROHO.
Do Others Think You Are Angry, When You Are Trying To Project Your Voice?
Hello I here people talking like it's fading out I try answering them but they tell me it makes no sense then I just go and nothing will wake me at all its scary sometimes as I'm confused of my… read more
Hello: Xyrem And Hunger?
Does this happen to anyone else? Please reply with an advice information
I Have Gone Into Sleep Paralysis Twice And It Is Really Scary.
When I talk with the doctors about it they are adamant that I don't have sleep paralysis. Am I going crazy and just imagining it? I had brownies with weed in them once and a half a bottle of weed in them. And I could not move but I kept saying I needed to go to the er. No one believes I could not move. Everyone thought I was faking not being able to move.
I will ask my dr. about this medication if I have another episode. Thank you.
Alcohol And Narcolepsy
My grandmother had narcolepsy and cataplexy. I have always been able to drink alcohol with no problem except for the last 5-7 years. It’s almost like a light switch one minute I feel fine and the next I’m totally passed out and don’t remember anything until I wake up the next morning. Could this be related to narcolepsy? My sister does the exact same thing.
I’ve only drank liquor and I was fine. It actually had the opposite affect on me
How Do You Deal With Sleep Paralyses?
Since developing narcolepsy two years ago, I've also been plagued by some nasty sleep paralyses. No hallucinations, thankfully, but there are mornings where I wake up, hit my alarm, and then get trapped in this sleep-like trance where I'm fully concious of my surroundings, but I can't move for 45 minutes to an hour. If someone shakes my shoulder, that breaks me out of my paralyses, but how can I ask for help if I can't even move? How can I help myself? I've missed so many classes and work shifts… read more
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