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Physical Pain/lasting Effects From Vivid Dreams?
One symptom I have had so long I didn't even know wasn't normal were the vivid dreams. I could count on one hand the number of "normal " dreams I've had where it feels more like a video game than a real life experience. Almost all of my dreams feel too real, as though my senses are heightened, and I can't tell I'm not awake. Some good, some bad, some just wierd. Now on to my question. Some of these dreams involve tragic events. One of the earliest, I remember surfing,something I have never done… read more
I've had this my whole life. I can say that the only thing that can curb the intensity of the violent ones is something that probably sounds crazy. It's to make sure your feet don't get hot while you… read more
Does Anyone Feel There Needs To Be More Awareness Over The Significant 90% Hypocretin Deficiency Between Type 1 And 2 Narcolepsy?
I ask this question because I am an LCPC and NCC certified mental health professional and I truly believe had I not chosen the path I did, I would not be as well off and "even-tempered" as I currently am
If you check out my story, you will understand more about why I bring this question to light
I feel it is my duty to warn about the significant higher risk those born with Type 1 Narcolepsy are at with being misdiagnosed, mis-medicate, and very likely may endure permanent neurological and… read more
I too have narcolepsy Type 1, but my cataplexy has always been fairly minimal, but still significant enough that I avoided social interactions where I might be around strangers who might see me buckle… read more
Hi, Has Anyone Had An Issue With The Dea Interfering With Your Health
I've never heard of it- not sure why it would happen...?
Is There Any Members Leaving With Narcolepsy In Mthatha Area?
Purpose of asking this question is that I'm interested for the more information health phacility support us and give us treatment
Just out of curiosity...?...where is Mthatha?
How Can You Be Tested For Narcolepsy?
I was unofficially diagnosed and started medication as my neurologist was confident that it was narcolepsy whilst I was added to waiting list for test (1 year wait but because of covid was a little… read more
Can Side Effects Of Stimulants Prescribed For Narcolepsy Mimic Symptoms Of ADHD?
I have both. But my ADHD was more apparent before I started my medications for narcolepsy.
How Long Naps Do You Take? When You Don't Have Those Little Naps During Day. And Is 1,5-2h Nap Okay?
My doctor told me no more than 30 to 45 minutes. Anything over an hour for me is bad. It is so hard to get backup when I sleep that long so I do agree with her. Also she said to take my a second dose… read more
I Need A Dr That Will Help Me
Where are you?
Why Do So Few Support Groups And Businesses Participate With The Hidden Disabilities Program?
This program in known worldwide to support those of us with medical needs/disabilities which are not apparent visually. They have a lanyard program which allows airports and other travel related business to subtly recognize that we may need extra care, assistance, time etc while traveling. What an incredible resource! Some airports ( one is Ft Lauderdale, FL) offer the lanyards and pins but it would be great if these could be obtained through our support groups.
Agreed!! I was told that my Dr could buy them to give out
Biofeedback Headbands
Has anyone had experience or know about biofeedback headbands that monitor sleep cycles and provide binaural beats that can help regulate sleep cycles? I came across an article about a Colorado engineer that developed a device foe his teenage daughter that was diagnosed with narcolepsy. He marketed the device under the name Sleep Shepherd Blue. I started trying to find the device and came across another called Dreem. Seems that both devices were purchased and removed from the market by someone… read more
I researched these as well, and came to the same conclusions. I did find a Dreem 2 for sale in India. https://india.dreem.com/. I have not reached out to them to see if they will ship to the US… read more
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