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When Are Narcolepsy Sufferers Going To Get The Same Support And Understanding As Any Body Else With A Disability?
I have actually had people at social welfare gets fits of giggles when I call to talk about my benefit after I tell them what my illness is. It blows my mind. It’s happened more than once!!! I think… read more
Any Advice For Coming Off Medication?
Wow! I feel that Ryan B really nailed it his response to you. While some may look at his words as negative, I understand exactly what he is saying. I was a single Mom when diagnosed, working full… read more
Disability For Narcolepsy?
Just wondering if anyone has been approved for Social Security Disability for their narcolepsy? I have type 2 along with fibromyalgia, chronic pain syndrome, hypothyroidism, high blood pressure, high cholesterol, pre-diabetes, major depressive disorder, PTSD, and morbid obesity. I don't know what more I need to do to prove them that I have multiple disabilities that effect my ability to make it out of bed every morning much less work a job that would probably fire me for all the time I'd miss… read more
That's when my narcolepsy started and there's a few of us in my family that also have it in different degrees with my sister being the worst.
Any Tips On Managing Narcolepsy While In College?
I'll be moving to college next month and i'm nervous about the environment change and how it will affect me, i'm not really sure how to deal with it all.
My university had a disability office that I would meet with. They gave me priority enrollment so I got to pick my classes before everyone else and get the times that work for me. They also would send… read more
For All The Narcoleptic Mother's: How Do You Manage?!
I have three children ranging in ages 3 to 7 and I'm so exhausted and irritable. I can't even pretend to keep up. On top of that I'm a homeschool mom!
Mine are 10 and 13 now which helps! I think my kids are extremely empathetic having a mom with a chronic illness.
Does Anyone Else Take New Nuvigil?
I take the new one AR Mod and work a job that I get to around 11 and leave at 3:30 or 4 so I don't fall asleep driving. I still have some off days. But at least can get to my job. My job knows I… read more
I Am Always Tired At 10am
Hello
I wake up at 7am and no matter what I do I always get tired at 10am. I get very sleepy. I’m ok nuvigil 250, strattera 25mg and take XYWAV at night. I’m in recovery so I can’t take any amphetamines. It feels like no matter what I do I have to nap at 10am or 2pm. Please let me know if you have any tips
It depends on your schedule and commitments but are you able to nap during the day? I pre-empt when I know I will struggle and nap over that time when possible. So if 10am was difficult time, I would… read more
I Am Taking 400mg Modafinil For Uncontrollable Daytime Sleeping And 80mg Fluoxetine For Cataplexy Total Collapse, Both Are No Longerworking.
I can take a full dose of Modafinil and, if I allow myself, go straight to sleep in seconds.
I am taking a full dose of Fuoxetine and experiencing total loss of muscle control and collapse. It worked like magic at first but now I am back to where I started.
Please, is there anything else I can try?
What Medication Seems To Work The Best For The Majority Of People
How Do Y’all Wake Up In The Morning?
I personally can remain conscious with armodafinil, but it’s waking up that is impossible for me and constantly threatened my employment before I started living with my parents and working from home. I take armodafinil around the first alarm (I usually don’t remember taking it - I know I’ve taken it because the pill laid out is gone.) I have to rotate through different alarms because I’ll habituate: shock watch that shocks me until I do jumping jacks, sonic boom alarm that shakes the bed and… read more
I am right there with you! For me, it’s literally the worst part of narcolepsy. I cannot get up on time to save my life. It’s embarrassing and gives me tons of guilt, shame, anxiety, and stress. I’ve… read more
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