What Kind Of Treatment Are You Doing For CATAPLEXY?
I asked my doctor about treatment for cataplexy, and she said I’d need to see a neurologist and start from there. While I’m waiting, I was wondering what kind of treatment you guys do??
I was put on a low dose of a blood pressure medication. I'm sorry I was taken off it because it made me dizzy but it also help me from having dreams. It helped a lot
I Am Struggling With Memory And Energy. I Have Type 2 Narcolepsy. Any Suggestion On How To Succeed At Work? Accommodations?
You may want to talk to your doctor and let them know you’re still struggling with brain fog at work when you’re feeling sleepy. They may need to up your dose of the medication or try something in… read more
Is Anyone With Type 1 Narcolepsy, Which Includes Cateplexy, Had Any Success With Meds Which Help Reduce Cateplexy? Prescription Or Other?
My cateplexy is becoming more frequent as time goes on.
George W.
What's On Your Holiday Wish List That Could Improve Your Life With Narcolepsy?
Yes a soundproof box to nap in while my child is kept busy and my house is magically cleaned!!! That would be bliss 🙂
Despite Alcohol Being Considered A "depressant" Does Anyone One Use It As A Stimulant?
Yes I use a little not a lot my dad was a alcoholic I use to over drink. I'm mindful of how much I sleep 😴💤 not a hangover no one wants that. I use just enough to sleep 🥱
Does Narcolepsy/cataplexy Get Any Easier The Older You Get Or Even The Longer You Have It?
No you just get old and develop osteoporosis and brittle bones. Most my praying moments( when I have sudden sleep attack), now the naps come with a broken bone as a bonus gift.
Has Anyone Here Explored The "gift" Side Of Narcolepsy?
I for one know that I have an incredible ability to dream and recall those dreams compared to others. If someone was to ask me to tell them a story, all I would have to do is tell them one of my dreams and their jaw drops in amazement and then I tell them "oh that was just my dream last night" and then they're even more blown away.
I've read that some theorize that perhaps the shamans of the past were possibly narcoleptic because "they had one foot in the waking world, and one foot in the… read more
When I have to wait at an airport, doctor's office, DMV, I can fall asleep and the wait doesn't seem long at all.
When Your Narcolepsy Is In Full Effect Does It Feel Chemically Induced As If You Took A Bunch Of Sleeping Pills?
When my narcolepsy kicks in for me it sort of feels chemically induced as if I’ve taken a hand full of Ambien vs not sleeping for a few days. It’s almost like I get this slight feeling down the back of my neck, it’s hard to describe. Does anyone else get this as well?? BTW I don’t have cataplexy, not sure if it makes a difference. Please let me know if you know what I’m talking about and can describe it in your words.
It surely does!
Does Anyone Else Have Tachycardia Along With Narcolepsy?
I’m on modafanil & Ritalin. I had been put on a beta blocker for an arrhythmia years before. Haven’t had any problems.
Something I've Noticed About Sleep Paralysis...
It's always bad but it's usually about the same intensity. I mean we can start to move a little with enormous effort, or we can make a little noise by trying to scream or we can blink or move our eyes and hopefully a spouse notices and will shake you to wake u up. Even prayer when we see the "demonic" entity. We can see that our struggles are starting to work. We are breaking free. Then when we wake up we feel a little better and a little less afraid of the next encounter. BUT (I suspect many of… read more
When my spells hit i become paralysised from head to toe. Can't move,talk or worn anyone it is gonna happen. I don't just have one. I have multiple in a roll,then after I have a numb head. My oldest… read more